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Channel: typhlitis – Conglomeration of Joy
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ICU

As of 8am this morning, Allistaire has been in the ICU.  It is amazing the contrast of 24 hours.  Yesterday, she awoke with cheer and joy and her ANC, (absolute neutrophil count), dropped to zero....

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PICU Day 2

Allistaire was so stoked for the big Seahawk’s game today.  She was cheering for Russell Wilson the whole time.  Okay, so maybe not.  But Sten and I had fun watching the game in between the many steps...

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Numbers

This morning I spent nearly an hour on the phone with Lisa Getzendaner, the Unrelated Donor Coordinator, getting a lot of information on the road ahead.  I am daunted by the incredible number of...

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Stagger, Tremble

We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed.  (2 Corinthians 4:8-9) Hard pressed.  Perplexed....

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Weeping

Every day I think, maybe today will be better, maybe today things will turn around, but every day I feel my face slammed hard up against the wall, the hot breath of terror hissed into my ear, knife...

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Wait and See

Strange how you can have expectations, just ideas you’ve grabbed from where?  Thresholds and time frames constructed of air, of nothingness, no structure to sustain them and yet, they hold power, they...

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Glimmer

Delayed Gratification.  Joy Set Before Me. You can endure a lot…if, if you see a glimmer of light.  If you can grasp onto that shred of hope.  But if it’s all for not, if nothing will come of all your...

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Quiver

I can’t tell you what it’s like to lose your child.  I simply don’t know.  But I can tell you what it’s like to walk through this world with your child’s life ever, ever hanging by a thread, ever...

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Transplant, Haplo-Style

You look out upon a field studded with rocks, rocks small that huddle together in the hand like eggs in a nest, fist-sized rocks, rocks you think if you gave them all your strength you could heave up...

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